Post OP thoughts: What the hell happened?

Its 10pm the night of the op and I'm desperately trying to relieve the tension in my head by writing out the days events. It may not relieve my head ache but it will at least document my fresh thoughts. Jaxon went for the surgery around 10am, the anaesthetist said with all four procedures and …

Continue reading Post OP thoughts: What the hell happened?

Featured

Pre-Op thoughts 💭

I've been anticipating this operation for a long time. I've wanted it for Jaxon. I've pushed for it based on the intent to improve his quality of life. It's horrible to see your baby retching, heaving, vomiting their entire feeds and then falling asleep from exhaustion and being weak due to the lack of nutrients. …

Continue reading Pre-Op thoughts 💭

Featured

Great Ormond Street: Round 1

This blog post is all about my first experience visiting Great Ormond Street Hospital, for my (at the time) 5 month old son, as an outpatient for his heart problems. I take you through my thoughts, feelings, questions and anticipations before, during and after our appointment. PRE GOSH Jaxon has had appointments with a specialist …

Continue reading Great Ormond Street: Round 1

Two weeks out: In hospital I’m just his Mum

13/12/2017 Since being discharged with diagnosis' two weeks ago, I believe we've been neglected to say the least. It's a disappointing but a recurring problem that discharge is always rushed and incompetent. Leaving the hospital at midnight on what I believed was "home leave" for the weekend to return for complete discharge Monday, turned into …

Continue reading Two weeks out: In hospital I’m just his Mum

Went to hospital with a 6 day old, left with a nearly 2 month old. Why..

So I'm trying to really quickly and briefly fill you in on what happened before I started writing blogs about Jaxon when he was 12 weeks old. But there's really nothing brief about his medical issues so I'll do the best I can. First things first, going way back to when he was born. As …

Continue reading Went to hospital with a 6 day old, left with a nearly 2 month old. Why..