Knowing what to say in situations you're unfamiliar with are difficult. Heres 5 things not to say when speaking to the parent or carer of a child with special educational needs and disability. A child with complex medical needs is a sensitive subject, here's how to form a good relationship with basic questions rephrased to gain understanding without offending or causing more upset.
I've been anticipating this operation for a long time. I've wanted it for Jaxon. I've pushed for it based on the intent to improve his quality of life. It's horrible to see your baby retching, heaving, vomiting their entire feeds and then falling asleep from exhaustion and being weak due to the lack of nutrients. …
It's a little delayed but here's an update on Jaxons two week hospital admission in February. This blog explains the reason for admission, gives an update on his heart at the time and explains parallel planning.