The never-ending rollercoaster

This blog is an open diary of the 10 days following Jaxons big op. It covers recovery, another complaint, operation results, occupational therapist and equipment plus my own worries about PND and going home.

Post OP thoughts: What the hell happened?

Its 10pm the night of the op and I'm desperately trying to relieve the tension in my head by writing out the days events. It may not relieve my head ache but it will at least document my fresh thoughts. Jaxon went for the surgery around 10am, the anaesthetist said with all four procedures and …

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Pre-Op thoughts đź’­

I've been anticipating this operation for a long time. I've wanted it for Jaxon. I've pushed for it based on the intent to improve his quality of life. It's horrible to see your baby retching, heaving, vomiting their entire feeds and then falling asleep from exhaustion and being weak due to the lack of nutrients. …

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Two months in hospital: the low down on the upcoming operation and my babys big heart.

Getting on the blogs this week aren't I! It seems to be a recurring theme that I lay low on the blogs whilst it's all crazy and then as the crazy gets extreme I blunt out the past few months before anything else can happen. It just my life at the moment! As I ended …

Continue reading Two months in hospital: the low down on the upcoming operation and my babys big heart.

“Why does Jaxon have a tube down his nose?”

Firstly, it's a Nasogastric tube also known as a NG tube. It goes up his nose, down his throat and ends in his stomach. It is for his milk and medications. For general information on feeding difficulties see NHS Dysphagia. This link explains general swallowing problems in both adults and children, causes and treatment. Everyone with …

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