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Pre-Op thoughts đź’­

I've been anticipating this operation for a long time. I've wanted it for Jaxon. I've pushed for it based on the intent to improve his quality of life. It's horrible to see your baby retching, heaving, vomiting their entire feeds and then falling asleep from exhaustion and being weak due to the lack of nutrients. …

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Great Ormond Street: Round 1

This blog post is all about my first experience visiting Great Ormond Street Hospital, for my (at the time) 5 month old son, as an outpatient for his heart problems. I take you through my thoughts, feelings, questions and anticipations before, during and after our appointment. PRE GOSH Jaxon has had appointments with a specialist …

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The Pros and Cons of tube feeding. Yes there are PROS!

Instagram followers, Facebook friends, random people on the bus..everyone has seen me tube feeding my son. I haven't hid it, I've haven't not posted his beautiful face because there's a tube stuck to it. I haven't saved feeding times for private spaces away from prying eyes. I'm a loud and proud mama to a tubie! …

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“Why does Jaxon have a tube down his nose?”

Firstly, it's a Nasogastric tube also known as a NG tube. It goes up his nose, down his throat and ends in his stomach. It is for his milk and medications. For general information on feeding difficulties see NHS Dysphagia. This link explains general swallowing problems in both adults and children, causes and treatment. Everyone with …

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