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Pre-Op thoughts đź’­

I've been anticipating this operation for a long time. I've wanted it for Jaxon. I've pushed for it based on the intent to improve his quality of life. It's horrible to see your baby retching, heaving, vomiting their entire feeds and then falling asleep from exhaustion and being weak due to the lack of nutrients. …

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Two months in hospital: the low down on the upcoming operation and my babys big heart.

Getting on the blogs this week aren't I! It seems to be a recurring theme that I lay low on the blogs whilst it's all crazy and then as the crazy gets extreme I blunt out the past few months before anything else can happen. It just my life at the moment! As I ended …

Continue reading Two months in hospital: the low down on the upcoming operation and my babys big heart.

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Great Ormond Street: Round 1

This blog post is all about my first experience visiting Great Ormond Street Hospital, for my (at the time) 5 month old son, as an outpatient for his heart problems. I take you through my thoughts, feelings, questions and anticipations before, during and after our appointment. PRE GOSH Jaxon has had appointments with a specialist …

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Went to hospital with a 6 day old, left with a nearly 2 month old. Why..

So I'm trying to really quickly and briefly fill you in on what happened before I started writing blogs about Jaxon when he was 12 weeks old. But there's really nothing brief about his medical issues so I'll do the best I can. First things first, going way back to when he was born. As …

Continue reading Went to hospital with a 6 day old, left with a nearly 2 month old. Why..