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What is a Discharge Planning Meeting and how did Jaxons go?

A 'discharge planning meeting', commonly abbreviated to a DPM, is a gathering of as many professionals involved in a patients care to discuss a safe transition from hospital to home. Today we had Jaxons second DPM. We were back in hospital just two days after the last one, until now. Who attended: •Lead Paediatric Neurodisability …

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Meet the geneticist: Are my future babies at risk and more than I bargained for..

Ok, so I'm not actually going to post a pic of his geneticist, or give any names but this blog will give you a little background on Jaxons geneticist, what he does, and our most recent appointment with him which was this morning (Tuesday 1st May 2018). I originally met the genetics doctor in November …

Continue reading Meet the geneticist: Are my future babies at risk and more than I bargained for..

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Two months in hospital: the low down on the upcoming operation and my babys big heart.

Getting on the blogs this week aren't I! It seems to be a recurring theme that I lay low on the blogs whilst it's all crazy and then as the crazy gets extreme I blunt out the past few months before anything else can happen. It just my life at the moment! As I ended …

Continue reading Two months in hospital: the low down on the upcoming operation and my babys big heart.

Two weeks out: In hospital I’m just his Mum

13/12/2017 Since being discharged with diagnosis' two weeks ago, I believe we've been neglected to say the least. It's a disappointing but a recurring problem that discharge is always rushed and incompetent. Leaving the hospital at midnight on what I believed was "home leave" for the weekend to return for complete discharge Monday, turned into …

Continue reading Two weeks out: In hospital I’m just his Mum

Went to hospital with a 6 day old, left with a nearly 2 month old. Why..

So I'm trying to really quickly and briefly fill you in on what happened before I started writing blogs about Jaxon when he was 12 weeks old. But there's really nothing brief about his medical issues so I'll do the best I can. First things first, going way back to when he was born. As …

Continue reading Went to hospital with a 6 day old, left with a nearly 2 month old. Why..