Two years of loving you

A letter from a mother to her son reflecting as he celebrates his second birthday after they didn't now if he would make it to his first.

Advertisements
Featured

What not to say to the parent of a child with special education needs and disability PLUS how to rephrase

Knowing what to say in situations you're unfamiliar with are difficult. Heres 5 things not to say when speaking to the parent or carer of a child with special educational needs and disability. A child with complex medical needs is a sensitive subject, here's how to form a good relationship with basic questions rephrased to gain understanding without offending or causing more upset.

Featured

Genetic Diagnosis #2: Bartters Syndrome

I missed a call from the geneticist. I kicked myself when I listened to the voicemail asking me to call back knowing they'd have left the office by now. Jaxons geneticist had recently sent more bloods to test for Bartters Syndrome. If you don't know the back story to this, he struggles significantly to maintain …

Continue reading Genetic Diagnosis #2: Bartters Syndrome

Featured

The latest milestone: The High Dependancy Unit.

Sigh with me guys. Another first for Jaxon. Not sitting up, not 'mama', not dipping his toes in the sea. Oh no, Jaxon does not do normal milestones. This milestone was *drumroll please*... the high dependency unit (HDU). The calm before the storm Following his operation that appeared to go so well on Friday 5th …

Continue reading The latest milestone: The High Dependancy Unit.

Featured

5 Ways Parenting a Special Needs Baby Changes Your Life: Chromosome Disorder Awareness Week

First things first, I really wanted to be sharing a positive post. All I ever want is to ooze positive, happy vibes. But even those with millions in the bank and a happy home have bad days. I've had more than my fair share of tough weeks recently and that's down to my sons rare diagnosis …

Continue reading 5 Ways Parenting a Special Needs Baby Changes Your Life: Chromosome Disorder Awareness Week

Featured

Allow me to reintroduce Jaxon: A summary of Jaxons diagnosis’ and how they affect him currently

Hello, If you're new to my blog, it can look a little overwhelming. If you've been following from the beginning, it can still be a little overwhelming. A lot has happened in the last 8-9 months and I write what we experience, as we experience it. This means each blog has been about something new. …

Continue reading Allow me to reintroduce Jaxon: A summary of Jaxons diagnosis’ and how they affect him currently