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Great Ormond Street: Round 1

This blog post is all about my first experience visiting Great Ormond Street Hospital, for my (at the time) 5 month old son, as an outpatient for his heart problems. I take you through my thoughts, feelings, questions and anticipations before, during and after our appointment. PRE GOSH Jaxon has had appointments with a specialist …

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Happy Valentines: Make Love, Not Babies (unless you want to, then go ahead skip this blog!)

Those posts "everyone is having babies and I'm over here like.. *insert current situation (options include swaddling a bottle of alcohol, taking flights or enjoy sleep)*" used to be me! Well if you want to keep that freedom, or if you're loving motherhood but don't want five under 5's (exaggeration I know), you're going to …

Continue reading Happy Valentines: Make Love, Not Babies (unless you want to, then go ahead skip this blog!)

Two weeks out: In hospital I’m just his Mum

13/12/2017 Since being discharged with diagnosis' two weeks ago, I believe we've been neglected to say the least. It's a disappointing but a recurring problem that discharge is always rushed and incompetent. Leaving the hospital at midnight on what I believed was "home leave" for the weekend to return for complete discharge Monday, turned into …

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The Pros and Cons of tube feeding. Yes there are PROS!

Instagram followers, Facebook friends, random people on the bus..everyone has seen me tube feeding my son. I haven't hid it, I've haven't not posted his beautiful face because there's a tube stuck to it. I haven't saved feeding times for private spaces away from prying eyes. I'm a loud and proud mama to a tubie! …

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“Why does Jaxon have a tube down his nose?”

Firstly, it's a Nasogastric tube also known as a NG tube. It goes up his nose, down his throat and ends in his stomach. It is for his milk and medications. For general information on feeding difficulties see NHS Dysphagia. This link explains general swallowing problems in both adults and children, causes and treatment. Everyone with …

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