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Pre-Op thoughts 💭

I've been anticipating this operation for a long time. I've wanted it for Jaxon. I've pushed for it based on the intent to improve his quality of life. It's horrible to see your baby retching, heaving, vomiting their entire feeds and then falling asleep from exhaustion and being weak due to the lack of nutrients. …

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Two months in hospital: the low down on the upcoming operation and my babys big heart.

Getting on the blogs this week aren't I! It seems to be a recurring theme that I lay low on the blogs whilst it's all crazy and then as the crazy gets extreme I blunt out the past few months before anything else can happen. It just my life at the moment! As I ended …

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Great Ormond Street: Round 1

This blog post is all about my first experience visiting Great Ormond Street Hospital, for my (at the time) 5 month old son, as an outpatient for his heart problems. I take you through my thoughts, feelings, questions and anticipations before, during and after our appointment. PRE GOSH Jaxon has had appointments with a specialist …

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Happy Valentines: Make Love, Not Babies (unless you want to, then go ahead skip this blog!)

Those posts "everyone is having babies and I'm over here like.. *insert current situation (options include swaddling a bottle of alcohol, taking flights or enjoy sleep)*" used to be me! Well if you want to keep that freedom, or if you're loving motherhood but don't want five under 5's (exaggeration I know), you're going to …

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Two weeks out: In hospital I’m just his Mum

13/12/2017 Since being discharged with diagnosis' two weeks ago, I believe we've been neglected to say the least. It's a disappointing but a recurring problem that discharge is always rushed and incompetent. Leaving the hospital at midnight on what I believed was "home leave" for the weekend to return for complete discharge Monday, turned into …

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The Pros and Cons of tube feeding. Yes there are PROS!

Instagram followers, Facebook friends, random people on the bus..everyone has seen me tube feeding my son. I haven't hid it, I've haven't not posted his beautiful face because there's a tube stuck to it. I haven't saved feeding times for private spaces away from prying eyes. I'm a loud and proud mama to a tubie! …

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