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Allow me to reintroduce Jaxon: A summary of Jaxons diagnosis’ and how they affect him currently

Hello, If you're new to my blog, it can look a little overwhelming. If you've been following from the beginning, it can still be a little overwhelming. A lot has happened in the last 8-9 months and I write what we experience, as we experience it. This means each blog has been about something new. …

Continue reading Allow me to reintroduce Jaxon: A summary of Jaxons diagnosis’ and how they affect him currently

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Maternal Mental Health Week: 5 tips to keep you YOU after having a baby

So I saw this week is maternal mental health week, it's all over Twitter and the gram with the hashtag #MaternalMHweek or #MaternalMentalHealthWeek (check it out). It surprised me to see so many women openly speaking about their experience of post natal depression or just general low mood following the birth of their baby. It's …

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What is a Discharge Planning Meeting and how did Jaxons go?

A 'discharge planning meeting', commonly abbreviated to a DPM, is a gathering of as many professionals involved in a patients care to discuss a safe transition from hospital to home. Today we had Jaxons second DPM. We were back in hospital just two days after the last one, until now. Who attended: •Lead Paediatric Neurodisability …

Continue reading What is a Discharge Planning Meeting and how did Jaxons go?

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Meet the geneticist: Are my future babies at risk and more than I bargained for..

Ok, so I'm not actually going to post a pic of his geneticist, or give any names but this blog will give you a little background on Jaxons geneticist, what he does, and our most recent appointment with him which was this morning (Tuesday 1st May 2018). I originally met the genetics doctor in November …

Continue reading Meet the geneticist: Are my future babies at risk and more than I bargained for..

The never-ending rollercoaster

This blog is an open diary of the 10 days following Jaxons big op. It covers recovery, another complaint, operation results, occupational therapist and equipment plus my own worries about PND and going home.

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Post OP thoughts: What the hell happened?

Its 10pm the night of the op and I'm desperately trying to relieve the tension in my head by writing out the days events. It may not relieve my head ache but it will at least document my fresh thoughts. Jaxon went for the surgery around 10am, the anaesthetist said with all four procedures and …

Continue reading Post OP thoughts: What the hell happened?