A letter from a mother to her son reflecting as he celebrates his second birthday after they didn't now if he would make it to his first.
Category: Jaxon
To the those parenting a child with medical needs..
It's #MaternalMentalHealthAwarenessWeek and I had to share with you the reality of parenting a child with ill health from an emotional, physical, financial and psychological perspective.
HEY MAMA, LOVE YOURSELF THIS VALENTINES DAY
Single or in a relationship on Valentines Day and not 100% happy? Here's some basic reminders on how to love yourself this V day.
How to travel with a medically complex tube fed baby. You can do it!
https://www.youtube.com/watch?v=TktQEy_fWd4 Just last week me and my 18 month old son Jaxon return from our second holiday together in the past 6 months since he was discharged from a long stay in hospital. I took on the challenge despite his around the clock feed and medications via a feeding tube and his abundance of medical …
Continue reading How to travel with a medically complex tube fed baby. You can do it!
Hospital, home or hospice?
How did we get to a point we're visiting a hospice? What does that mean? Is Jaxon okay? Jaxons diagnosis has not changed. His prognosis is still unknown. His syndromes affect his quality of life hugely; he is fed with a feeding tube, has multiple medications throughout the day, has numerous appointments a week. His …
Mamas going back to school!
My blogging has dipped considerably since leaving hospital for a multitude of reasons; settling in at home, getting organised with carers, a holiday (I still can't believe we made it!) and trying to figure out how the hell I'm going to get my degree done. Mamas going back to school! A few weeks ago I …
One year of motherhood, not the kind you dream about
Reflecting on my first year as a single mum parenting a 0-1 year old with two genetic syndromes and one life-threatening heart conditon.
