How did we get to a point we’re visiting a hospice? What does that mean? Is Jaxon okay? […]
Category Archive: Jaxon
My blogging has dipped considerably since leaving hospital for a multitude of reasons; settling in at home, getting […]
Reflecting on my first year as a single mum parenting a 0-1 year old with two genetic syndromes and one life-threatening heart conditon.
I missed a call from the geneticist. I kicked myself when I listened to the voicemail asking me […]
A letter to my one year old to celebrate his first birthday.
In November 2017, after receiving his heart diagnosis, I was told it would be a good sign “if he made it to one”.
Here we are baby.
Count your blessings. Health is wealth.
Sigh with me guys. Another first for Jaxon. Not sitting up, not ‘mama’, not dipping his toes in […]
As I sit at my sons bedside in Leicesters Glenfield Hospital as he sleeps peacefully, I’m overwhelmed with […]
