The (limited) practical, financial and emotional help available to parent carers in the UK – for Carers Week 2019

For Carers Awareness Week 2019 I made it my task to dig deep and try to find what support is available to help us care for our unpaid carers. You know, those people so filled with love and compassion that they save the NHS £132 billion a year according to a recent study by Carers …

Continue reading The (limited) practical, financial and emotional help available to parent carers in the UK – for Carers Week 2019

Advertisements

How to travel with a medically complex tube fed baby. You can do it!

https://www.youtube.com/watch?v=TktQEy_fWd4 Just last week me and my 18 month old son Jaxon return from our second holiday together in the past 6 months since he was discharged from a long stay in hospital. I took on the challenge despite his around the clock feed and medications via a feeding tube and his abundance of medical …

Continue reading How to travel with a medically complex tube fed baby. You can do it!

Featured

What not to say to the parent of a child with special education needs and disability PLUS how to rephrase

Knowing what to say in situations you're unfamiliar with are difficult. Heres 5 things not to say when speaking to the parent or carer of a child with special educational needs and disability. A child with complex medical needs is a sensitive subject, here's how to form a good relationship with basic questions rephrased to gain understanding without offending or causing more upset.

Featured

Hospital, home or hospice?

How did we get to a point we're visiting a hospice? What does that mean? Is Jaxon okay? Jaxons diagnosis has not changed. His prognosis is still unknown. His syndromes affect his quality of life hugely; he is fed with a feeding tube, has multiple medications throughout the day, has numerous appointments a week. His …

Continue reading Hospital, home or hospice?