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Catch up with Jaxon: Carers, bladder retention, back to the operating theatre..

As I sit at my sons bedside in Leicesters Glenfield Hospital as he sleeps peacefully, I'm overwhelmed with Deja Vu. However, its been two months since the operation that failed us, twice now. I don't have time to recap as there's a few bits during the interim I want to update you on, before returning …

Continue reading Catch up with Jaxon: Carers, bladder retention, back to the operating theatre..

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5 Ways Parenting a Special Needs Baby Changes Your Life: Chromosome Disorder Awareness Week

First things first, I really wanted to be sharing a positive post. All I ever want is to ooze positive, happy vibes. But even those with millions in the bank and a happy home have bad days. I've had more than my fair share of tough weeks recently and that's down to my sons rare diagnosis …

Continue reading 5 Ways Parenting a Special Needs Baby Changes Your Life: Chromosome Disorder Awareness Week