Hello, If you’re new to my blog, it can look a little overwhelming. If you’ve been following from […]
So I saw this week is maternal mental health week, it’s all over Twitter and the gram with […]
A ‘discharge planning meeting’, commonly abbreviated to a DPM, is a gathering of as many professionals involved in […]
Ok, so I’m not actually going to post a pic of his geneticist, or give any names but […]
I’ve been anticipating this operation for a long time. I’ve wanted it for Jaxon. I’ve pushed for it […]
Getting on the blogs this week aren’t I! It seems to be a recurring theme that I lay […]
It’s a little delayed but here’s an update on Jaxons two week hospital admission in February. This blog explains the reason for admission, gives an update on his heart at the time and explains parallel planning.
This blog post is all about my first experience visiting Great Ormond Street Hospital, for my (at the […]
Those posts “everyone is having babies and I’m over here like.. *insert current situation (options include swaddling a […]
Instagram followers, Facebook friends, random people on the bus..everyone has seen me tube feeding my son. I haven’t […]
There is no excerpt because this is a protected post.
This blog is an open diary of the 10 days following Jaxons big op. It covers recovery, another complaint, operation results, occupational therapist and equipment plus my own worries about PND and going home.
Its 10pm the night of the op and I’m desperately trying to relieve the tension in my head […]