How did we get to a point we’re visiting a hospice? What does that mean? Is Jaxon okay? […]
My blogging has dipped considerably since leaving hospital for a multitude of reasons; settling in at home, getting […]
I missed a call from the geneticist. I kicked myself when I listened to the voicemail asking me […]
Sigh with me guys. Another first for Jaxon. Not sitting up, not ‘mama’, not dipping his toes in […]
As I sit at my sons bedside in Leicesters Glenfield Hospital as he sleeps peacefully, I’m overwhelmed with […]
First things first, I really wanted to be sharing a positive post. All I ever want is to ooze […]
Hello, If you’re new to my blog, it can look a little overwhelming. If you’ve been following from […]
So we’re reaching 4 months in hospital. Yes, I sighed as I wrote that. It’s been eventful, it’s […]
So I saw this week is maternal mental health week, it’s all over Twitter and the gram with […]
A ‘discharge planning meeting’, commonly abbreviated to a DPM, is a gathering of as many professionals involved in […]
Ok, so I’m not actually going to post a pic of his geneticist, or give any names but […]
I’ve been anticipating this operation for a long time. I’ve wanted it for Jaxon. I’ve pushed for it […]
Getting on the blogs this week aren’t I! It seems to be a recurring theme that I lay […]
It’s a little delayed but here’s an update on Jaxons two week hospital admission in February. This blog explains the reason for admission, gives an update on his heart at the time and explains parallel planning.
This blog post is all about my first experience visiting Great Ormond Street Hospital, for my (at the […]
Those posts “everyone is having babies and I’m over here like.. *insert current situation (options include swaddling a […]
Instagram followers, Facebook friends, random people on the bus..everyone has seen me tube feeding my son. I haven’t […]
Reflecting on my first year as a single mum parenting a 0-1 year old with two genetic syndromes and one life-threatening heart conditon.
A letter to my one year old to celebrate his first birthday.
In November 2017, after receiving his heart diagnosis, I was told it would be a good sign “if he made it to one”.
Here we are baby.
Count your blessings. Health is wealth.